Who was born with half a heart?

A Texas couple is mourning the loss of their newborn baby after he was born with half of a heart. Juan and Alexis Rivera shared that their son, Juan Jr., died from a rare heart defect on Thursday morning, 10 days after his birth.

Can a baby survive born with half a heart?

With proper treatment, many babies with hypoplastic left heart syndrome survive.

Can someone live with half a heart?

Huge challenges are faced by children born with 'half a heart'—a condition known as hypoplastic left heart syndrome. The syndrome is a rare congenital disorder in which the left half of the heart is undersized and cannot perform its function of pumping blood to the body. Without surgery, it is fatal.

How old is the oldest person with hypoplastic left heart?

The oldest living person with HLHS is their 30s.

How long do HLHS patients live?

The clinical presentations of HLHS occur most frequently between days 1 and 3 of life, and include respiratory distress with tachypnea and mild cyanosis, shock, and less commonly, severe cyanosis (31). Most infants die within the first two weeks of life, with an average age at death of 4.5 days (31,33,34).

Knox's Journey | Born With Half a Heart

What celebrity has hypoplastic left heart syndrome?

Carolina Panthers tight end Greg Olsen has a son with hypoplastic left heart syndrome, and actor Mark Feuerstein has a daughter born with an anomalous coronary artery.

Can HLHS be cured?

Without treatment, babies afflicted with hypoplastic left heart syndrome can die within the first days or weeks of life. Treatment consists of a heart transplant or a series of operations to restore the function of the left side of the heart.

How many babies are born with HLHS each year?

The Centers for Disease Control and Prevention (CDC) estimates that each year about 1,025 babies in the United States are born with hypoplastic left heart syndrome. In other words, about 1 out of every 3,841 babies born in the United States each year is born with hypoplastic left heart syndrome. Did You Know?

Can you live a normal life with HLHS?

After treatment, children with HLHS can go on to live relatively normal lives. Our Wellness Program supports families and helps navigate the challenges of life with a congenital heart condition through clinic visits, and events and activities.

Can you have kids with HLHS?

Children with HLHS after surgery have lower exercise tolerance. Some children will need a heart transplant to survive into adulthood. Your child will need regular follow-up care at a center specializing in congenital heart care. Discuss your child's specific outlook with your healthcare provider.

How rare is half a heart?

HLHS is so rare, according to the Centers for Disease Control, 1,025 babies are born with it each year in the U.S. The cause of the defect is unknown.

How long do kids with half a heart live for?

What is the survival rate of hypoplastic left heart syndrome? About 20% to 60% of babies with hypoplastic left heart syndrome survive their first year of life. After that, the survival rate for the next five, 10 and 15 years is about 40%.

Can a half a heart be transplanted?

Right, Owen smiles happily months after his heart surgery. At just 17 days old, Owen Monroe became the world's first partial heart transplant recipient. The revolutionary surgery was performed in April 2022 by Duke pediatric heart surgeons at Duke University Hospital.

What happens when a baby is born with half a heart?

For babies born with HLHS to survive, a heart vessel called the ductus arteriosus (1), which normally closes shortly after birth, needs to remain open so that blood can pass from the baby's heart to the body. To keep the vessel from closing, doctors typically treat the baby with a medication called prostaglandin E1.

Has a baby ever been born with two hearts?

Aside from conjoined twins, no human is born with two hearts. But in the case of extreme heart disease, called cardiomyopathy, rather than receiving a donor heart and removing yours, doctors can graft a new heart on to your own to help share the work.

How is hypoplastic left heart treated?

Hypoplastic left heart syndrome is treated through several surgical procedures or a heart transplant. Your child's health care provider will discuss treatment options with you. If the diagnosis is made before birth, care providers usually recommend delivery at a hospital with a cardiac surgery center.

Is HLHS a disability?

Hypoplastic left heart syndrome is a disabling condition on the Compassionate Allowance List, which qualifies an individual for an expedited approval process.

Do babies with HLHS need a heart transplant?

These treatments are not a "cure," however, and children with HLHS will need expert medical attention for the rest of their lives. For babies with HLHS, treatment generally consists of a three-staged surgical approach, or heart transplantation.

Is HLHS more common in boys?

Birth prevalence of HLHS is approximately 1 in 4000 births. HLHS is slightly more common in males.

Why does HLHS occur?

As with most congenital heart defects, there is no known cause. About 10% of babies with hypoplastic left heart syndrome also have other birth defects. It is also associated with some genetic diseases such as Turner syndrome, Jacobsen syndrome, trisomy 13 and 18.

What is the abortion rate for HLHS?

Of the remaining 118 cases, 48% were diagnosed with HLHS, 21% hypoplastic right heart, 19% complex single ventricle, and 12% unbalanced atrioventricular septal defect. Overall termination rate was 15.4%, with 95% CI (11.67%-20.53%).

What are the 3 surgeries for hypoplastic left heart syndrome?

The series of three reconstructive operations to repair HLHS — the Norwood, Glenn and Fontan procedures — is known as " Staged Reconstruction ." Frequent surveillance in infancy and early childhood is important to minimize risk factors for the eventual Fontan operation.

What is the most severe form of hypoplastic left heart syndrome?

Similar to other congenital heart defects, hypoplastic left heart syndrome also has a spectrum of severity. In the most severe form, aortic and mitral valve are atretic, with a diminutive ascending aorta and markedly hypoplastic left ventricle.

Does Miley Cyrus have tachycardia?

Opening Up About Her Health In Her Memoir

But it does bother her: “The type of tachycardia I have isn't dangerous. It won't hurt me, but it does bother me," she penned in her autobiography.

What is the longest living heart transplant?

Tony Huesman, who survived with a single transplanted heart longer than any other transplant patient, died Aug. 9 at his home in Washington Township, Ohio. Huesman received his heart in August 1978 at Stanford Hospital & Clinics, one of the early beneficiaries of the hospital's heart transplant program.